Russian Father Says U.S. Doctors’ PR Stunt Left His Son Brain Dead
A Russian teen travelled halfway around the world so U.S. doctors could remove a brain stem tumour but the risky surgery left him brain dead, The Associated Press reports.
Now his anguished father is lashing out at the Oklahoma hospital and hoping for a miracle recovery. Sabit Kurbanov said the one condition on the free operation for his 16-year-old son, David, was that it be filmed for a story by a television station.
When his son became brain dead several weeks after the operation, Kurbanov said, he had been led to believe his son would fully recover, and he accused St. Anthony Hospital of performing experimental surgery.
Kurbanov, speaking through a translator, said the doctor and hospital were more interested in promoting themselves than properly caring for his son.
The news story amounted to a “TV commercial†that “talked about the hospital and the doctor and that even people from Russia came to them to find miracles,†Kurbanov said bitterly.
“There is no support at St. Anthony; there must be some other hidden agenda the doctors pursue,†said the father, who refuses to end life support for his son.
“It’s one of those foreign man in a foreign land situations,†said lawyer Kelly Bishop, who is representing Kurbanov to make sure David is cared for at the hospital and his father can see him regularly. He said there are no plans for a lawsuit.
The hospital said the filming was not a requirement for the operation. It said it never planned a commercial based on David and the father and son voluntarily signed consent forms for the filming.
“This was not some marketing ploy,†said Dr. Paul Francel, David’s neurosurgeon, who insists he performed the risky surgery out of goodwill.
David’s journey to Oklahoma City began early last year, when doctors in Moscow discovered a tumour that had wrapped around his brain stem, crowding the portion that controls involuntary body functions such as balance, swallowing and appetite.
Surgeons in Moscow had scheduled an operation for March 2006 but warned the Kurbanovs there was a 30-per-cent chance David could have complications, such as partial paralysis. The family put off the operation and sought out alternative medicines.
“David didn’t like the idea he would be handicapped in any way,†Kurbanov said.
Then, Kurbanov said, a U.S. missionary living in Russia familiar with David’s story sent copies of his MRIs to Francel and the doctor eventually agreed to do the US$100,000 operation for free.
While Russian doctors warned of potential complications, the missionary billed Francel as a “super doctor who had performed more than 6,000 surgeries†and treated Middle Eastern elites and the powerful, he said.
But removing David’s type of tumour comes with a high probability of complications, said David Schiff, co-director of the Neuro-Oncology Center at the University of Virginia. It is not uncommon for patients with brain stem tumours to require feeding tubes or experience double vision while in recovery, he said.
“The brain stem is very high-priced real estate,†Schiff said.
On the day of the surgery, doctors told David he’d see his father in a few hours. And that night, the local news aired a feature story on the operation and said David could be going home in three days.
Francel and his team discovered the golf ball-sized tumour was pilocytic astrocytoma, usually found in children and treated with surgery depending on its location in the brain.
In the weeks following the surgery, Francel said David was able to breathe on his own for short periods and follow rudimentary commands but eventually succumbed to infections he had been battling since before the operation and became brain dead. Why David never recovered is unclear, only that these types of operations are risky and Francel said the boy was in a weakened state before the surgery.
Francel said the father was frustrated with his son’s condition and removed him from the case.
Kurbanov had also battled with the hospital over visitation hours but that has since been resolved.
The hospital said it has tried looking for other facilities to take David as Kurbanov has requested but none will accept a brain dead patient.
Kurbanov said he will keep vigil, even though doctors say there is no chance for recovery and have asked to harvest the boy’s organs for transplants. Kurbanov does not trust them, or the medical charts written in a language he does not understand.
He said David breathed on his own recently with some assistance from a ventilator and he spotted slight movement in his arms and shoulders.
“All he needs is proper care and a careful approach to treatment,†Kurbanov said.
“My boy is alive,†he said.
“God is with him.â€
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